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DISABILITY VISIBILITY

FIRST-PERSON STORIES FROM THE TWENTY-FIRST CENTURY

Wong's discerning selections, bolstered by the activism that shines through, will educate and inspire readers.

A self-described "disabled activist” brings together diverse perspectives in an anthology to be published on the 30th anniversary of the Americans With Disabilities Act.

Wong, the founder and director of the Disability Visibility Project, makes it clear that she never intended the book to serve as a "best of" work or a quasi-academic syllabus for “Disability 101.” As she writes, “I want to center the wisdom of disabled people and welcome others in, rather than asking for permission or acknowledgment.” The editor notes that, according to the most recent U.S. census, 20% of citizens in the country live with a disability. The book is divided into four sections. "Being" captures writings that explain the daily challenges of wrestling with a disability, from blindness and deafness to autism, bipolar personality, generalized mental illness, fibromyalgia, cerebral palsy, spina bifida, and others. In “Becoming,” the essays focus less on defining a specific disability and more on how the contributors have figured out how to follow a life-affirming path. "Doing" displays the accomplishments—many of them quite remarkable—that affect not only the anthologists, but also society at large. The final section, "Connecting," illuminates how those labeled as disabled find ways to transcend isolation. Some of the essays are original, but many have been previously published in newspapers, magazines, scholarly journals, and elsewhere. Readers will recognize relatively common scenes, such as Haben Girma’s navigating with a guide dog (“Guide Dogs Don’t Lead Blind People. We Wander as One.”), while other contributions ably demonstrate that not all disabilities are apparent. Recognizing that “it is impossible to capture the full expanse of the disability experience in one book,” the editor offers a robust section of further reading that encompasses not just nonfiction, but also fiction, poetry, podcasts, and other forms of expression.

Wong's discerning selections, bolstered by the activism that shines through, will educate and inspire readers.

Pub Date: June 30, 2020

ISBN: 978-1-984899-42-2

Page Count: 240

Publisher: Vintage

Review Posted Online: March 18, 2020

Kirkus Reviews Issue: April 15, 2020

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ELON MUSK

Alternately admiring and critical, unvarnished, and a closely detailed account of a troubled innovator.

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A warts-and-all portrait of the famed techno-entrepreneur—and the warts are nearly beyond counting.

To call Elon Musk (b. 1971) “mercurial” is to undervalue the term; to call him a genius is incorrect. Instead, Musk has a gift for leveraging the genius of others in order to make things work. When they don’t, writes eminent biographer Isaacson, it’s because the notoriously headstrong Musk is so sure of himself that he charges ahead against the advice of others: “He does not like to share power.” In this sharp-edged biography, the author likens Musk to an earlier biographical subject, Steve Jobs. Given Musk’s recent political turn, born of the me-first libertarianism of the very rich, however, Henry Ford also comes to mind. What emerges clearly is that Musk, who may or may not have Asperger’s syndrome (“Empathy did not come naturally”), has nurtured several obsessions for years, apart from a passion for the letter X as both a brand and personal name. He firmly believes that “all requirements should be treated as recommendations”; that it is his destiny to make humankind a multi-planetary civilization through innovations in space travel; that government is generally an impediment and that “the thought police are gaining power”; and that “a maniacal sense of urgency” should guide his businesses. That need for speed has led to undeniable successes in beating schedules and competitors, but it has also wrought disaster: One of the most telling anecdotes in the book concerns Musk’s “demon mode” order to relocate thousands of Twitter servers from Sacramento to Portland at breakneck speed, which trashed big parts of the system for months. To judge by Isaacson’s account, that may have been by design, for Musk’s idea of creative destruction seems to mean mostly chaos.

Alternately admiring and critical, unvarnished, and a closely detailed account of a troubled innovator.

Pub Date: Sept. 12, 2023

ISBN: 9781982181284

Page Count: 688

Publisher: Simon & Schuster

Review Posted Online: Sept. 12, 2023

Kirkus Reviews Issue: Oct. 15, 2023

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THE IMMORTAL LIFE OF HENRIETTA LACKS

Skloot's meticulous, riveting account strikes a humanistic balance between sociological history, venerable portraiture and...

A dense, absorbing investigation into the medical community's exploitation of a dying woman and her family's struggle to salvage truth and dignity decades later.

In a well-paced, vibrant narrative, Popular Science contributor and Culture Dish blogger Skloot (Creative Writing/Univ. of Memphis) demonstrates that for every human cell put under a microscope, a complex life story is inexorably attached, to which doctors, researchers and laboratories have often been woefully insensitive and unaccountable. In 1951, Henrietta Lacks, an African-American mother of five, was diagnosed with what proved to be a fatal form of cervical cancer. At Johns Hopkins, the doctors harvested cells from her cervix without her permission and distributed them to labs around the globe, where they were multiplied and used for a diverse array of treatments. Known as HeLa cells, they became one of the world's most ubiquitous sources for medical research of everything from hormones, steroids and vitamins to gene mapping, in vitro fertilization, even the polio vaccine—all without the knowledge, must less consent, of the Lacks family. Skloot spent a decade interviewing every relative of Lacks she could find, excavating difficult memories and long-simmering outrage that had lay dormant since their loved one's sorrowful demise. Equal parts intimate biography and brutal clinical reportage, Skloot's graceful narrative adeptly navigates the wrenching Lack family recollections and the sobering, overarching realities of poverty and pre–civil-rights racism. The author's style is matched by a methodical scientific rigor and manifest expertise in the field.

Skloot's meticulous, riveting account strikes a humanistic balance between sociological history, venerable portraiture and Petri dish politics.

Pub Date: Feb. 9, 2010

ISBN: 978-1-4000-5217-2

Page Count: 320

Publisher: Crown

Review Posted Online: Dec. 22, 2010

Kirkus Reviews Issue: Jan. 1, 2010

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