WHAT BEN FRANKLIN WOULD HAVE TOLD ME

A boy with a fatal disease sets out to help a political refugee restore his shattered family in Gordon’s debut coming-of-age novel.

In the late 1970s, Lee Adams is just 12 years old and has a rare condition called Hutchinson-Gilford progeria syndrome, which causes his cells to age rapidly. He weighs only 35 pounds and has the wizened appearance of a bald, 102-year-old man; he’s also plagued by arteriosclerosis and arthritis and is likely to die from a heart attack or blood clot in his teens. He has a sharp mind and a keen interest in American history, especially Benjamin Franklin’s motivational wisdom; he wants to indulge this interest during a long-anticipated trip from his Newark, New Jersey, home to Washington, D.C., accompanied by his mom, Cass, and soul mate, Kira Throop, a 13-year-old girl who also has progeria. After Kira dies suddenly, Cass finds herself unable to take off work, so she insists that Lee make the trip anyway, accompanied by newly hired caretaker Tomás Concepción. Lee is suspicious of Tomás, who drags him around Washington on mysterious errands, but the boy finally gets him to tell him what’s going on: He’s an Argentinian journalist who was jailed and tortured in his home country three years ago along with his wife, Violeta; he’s now searching for news of her and their baby, who he fears may have been taken away and sold on the black market. Lee eagerly joins in Tomás’ quest, and they’re helped by Margaret, a Washington Post reporter, and Alicia, an Argentinian expat connected to the “Abuelas,” an underground network of women who gather information about the disappeared. Lee and the others finally uncover leads that may result in the reunion of Tomás’ family—and also learn why this might be a bad idea.

Gordon’s novel is a plangent study of a fearsome disease, depicted in language that’s raptly evocative but never sentimental: “There weren’t any words created that could say why he was on this treadmill with time, or why his collarbones were disintegrating like limestone, or why his spine felt like a brittle trail of broken teeth.” It’s also a dark, gripping investigation of Argentina’s experience with brutal dictatorship in the 1970s and ’80s, full of paranoia and sinister, Kafkaesque atmospherics, as when a character watches secret police descend on her family’s house in Buenos Aires: “She…saw the shadows of two figures being hauled out of her parents’ house—first her father, who had difficulty walking, then her mother sagging behind….She knew she would never see her parents again.” Gordon’s prose is vivid and subtly allusive, conjuring character and feeling from details of appearance and behavior, as in a description of Tomás’ “industrial lunch box and paratrooper shoes” and how he has the “depressed cross-eyed delirium of an undertaker.” The end result is a searching meditation on mortality and hope that’s all the more powerful for being filtered through the quirky point of view of a child.

A soulful journey that offers surprises and unforeseen victories.