A frank, compassionate, and highly detailed account of the roller-coaster ride of caring for a disabled, autistic child.
Factor (Love Maps, 2015, etc.) chronicles life with her nonverbal son Felix, who is autistic and physically disabled.
When the planes hit the World Trade Center towers on 9/11, the author’s boyfriend, Jason, was near the buildings. While she waited for news from him, she had the agonizing fear that they might never have a child together, which led them to getting married and pregnant a year later. During her pregnancy, Factor contracted chicken pox, which, though she didn’t realize it at the time, hurt her growing fetus. In this honest memoir that vibrates with unconditional love, the author details what life is like with Felix and her other two children. It took many months, numerous visits to doctors and specialists, and endless tests before she found out just how handicapped Felix would be due to his lack of white matter in his brain. Factor adeptly chronicles each step of the process, each moment of triumph when Felix reached a new goal, and the times when she and her husband felt dismay and even shame when he failed to advance like the other toddlers around him. Throughout, readers gain a sense of the complexity of Felix, whether he’s happy, responding to music therapy, or engaged in some awful fit that forces him to scream and tear at his own body. Factor also discusses her other two children, who were born without such issues, her battles with the health care and educational systems, and her subsequent founding of the nonprofit community center Extreme Kids & Crew. The author’s story demonstrates the need for more quality help for parents of children with disabilities, who will find solace in knowing that others have struggled and found joy in this type of parenting.
A frank, compassionate, and highly detailed account of the roller-coaster ride of caring for a disabled, autistic child.Pub Date: Aug. 22, 2017
ISBN: 978-1-941529-72-0
Page Count: 240
Publisher: Parallax Press
Review Posted Online: May 20, 2017
Kirkus Reviews Issue: June 15, 2017
BOOK REVIEW
The author's youthfulness helps to assure the inevitable comparison with the Anne Frank diary although over and above the...
Elie Wiesel spent his early years in a small Transylvanian town as one of four children.
He was the only one of the family to survive what Francois Maurois, in his introduction, calls the "human holocaust" of the persecution of the Jews, which began with the restrictions, the singularization of the yellow star, the enclosure within the ghetto, and went on to the mass deportations to the ovens of Auschwitz and Buchenwald. There are unforgettable and horrifying scenes here in this spare and sombre memoir of this experience of the hanging of a child, of his first farewell with his father who leaves him an inheritance of a knife and a spoon, and of his last goodbye at Buchenwald his father's corpse is already cold let alone the long months of survival under unconscionable conditions.
Pub Date: Jan. 16, 2006
ISBN: 0374500010
Page Count: 120
Publisher: Hill & Wang
Review Posted Online: Oct. 7, 2011
Kirkus Reviews Issue: Jan. 15, 2006
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular...
A neurosurgeon with a passion for literature tragically finds his perfect subject after his diagnosis of terminal lung cancer.
Writing isn’t brain surgery, but it’s rare when someone adept at the latter is also so accomplished at the former. Searching for meaning and purpose in his life, Kalanithi pursued a doctorate in literature and had felt certain that he wouldn’t enter the field of medicine, in which his father and other members of his family excelled. “But I couldn’t let go of the question,” he writes, after realizing that his goals “didn’t quite fit in an English department.” “Where did biology, morality, literature and philosophy intersect?” So he decided to set aside his doctoral dissertation and belatedly prepare for medical school, which “would allow me a chance to find answers that are not in books, to find a different sort of sublime, to forge relationships with the suffering, and to keep following the question of what makes human life meaningful, even in the face of death and decay.” The author’s empathy undoubtedly made him an exceptional doctor, and the precision of his prose—as well as the moral purpose underscoring it—suggests that he could have written a good book on any subject he chose. Part of what makes this book so essential is the fact that it was written under a death sentence following the diagnosis that upended his life, just as he was preparing to end his residency and attract offers at the top of his profession. Kalanithi learned he might have 10 years to live or perhaps five. Should he return to neurosurgery (he could and did), or should he write (he also did)? Should he and his wife have a baby? They did, eight months before he died, which was less than two years after the original diagnosis. “The fact of death is unsettling,” he understates. “Yet there is no other way to live.”
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular clarity.Pub Date: Jan. 19, 2016
ISBN: 978-0-8129-8840-6
Page Count: 248
Publisher: Random House
Review Posted Online: Sept. 29, 2015
Kirkus Reviews Issue: Oct. 15, 2015
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