HABEN

An Eritrean American Deafblind disabilities advocate tells the story of how she learned to succeed in a world made to the measure of sighted, hearing people.

Haben grew up in Oakland as the daughter of Eritrean parents who fled war-torn Ethiopia. Born with exceptionally poor vision and hearing that deteriorated steadily as she aged, her Deafblind world felt neither “small [nor] limited” and was instead her comfortable “normal.” Though the author’s disabilities sometimes caused her to struggle in school and daily life, her positive outlook—shaped in part by parents who had struggled to build a new life in America and playmates who treated her as “someone with gifts to share and lessons to teach”—helped her overcome the barriers that stood in her way. As a teenager, the author consciously transcended both her limitations and the protective boundaries set by her parents by learning to salsa and participating in a school-building project in Mali. She spent part of her post–high school summer at the Louisiana Center for the Blind, where she learned how to navigate with a cane and guide dog and to use a radial arm saw. In college, the author unwittingly stumbled upon her career path when she fought for, and won, the right to have the printed cafeteria menus she could not read emailed to a personal computer that translated them into digital braille. She went on to attend Harvard Law School, becoming its first Deafblind graduate. As a public service lawyer, she became part of the legal team that helped expand coverage provided by the Americans with Disabilities Act to include not just the brick-and-mortar world, but the digital one as well. Warmhearted and optimistic, the book celebrates personal courage and triumph as well as the unlimited potential of those whose real disability is living in a society that too often does not make accommodations for their physical impairments.

An inspiring and illuminating memoir.