A well-researched, perceptive exploration of a rare genetic disorder seen through the eyes of a mother and son.
A personal look at Williams syndrome, “a genetic fluke that strip[s] one in every 10,000 people of the inherent wariness, skepticism, and inhibition that [are] hardwired into the rest of us.”
In her debut, former Houston Chronicle reporter Latson combines the moving story of Gayle and her son Eli, a child with Williams, with scientific data on this rare genetic disorder. Characterized by an elfish appearance, sleeplessness, heart murmurs, sensitivity to sound, and cognitive and developmental difficulties, the biggest issue with Williams syndrome is that people who have it are overly friendly, too trusting, and unconditionally loving toward everyone, including strangers. For Gayle, this meant she was not able to let Eli out of her sight, for she never knew when he would head toward someone with open arms, wanting a hug or wanting to give a hug. Approximately 30,000 Americans have Williams syndrome, making it less common than Down syndrome or autism, but its effects on the parents and children are no less profound and life-changing. Latson shares Gayle’s story from the moments of Eli’s diagnosis and into his teen years. As a single mother, she struggles with raising Eli, trying to navigate the health care system, work, and finding places where Eli can be himself without causing disruptions. Attending a special camp helped Eli make new friends, but Gayle was unable to relax and enjoy herself. When Eli entered puberty, Gayle faced further obstacles, as Eli openly experienced sexual desire but was not fully aware of what that meant physically. Latson tells the story with great sympathy and eloquence, giving voice to the frustration, anguish, and despair a parent feels when their child struggles with a rare disorder.
A well-researched, perceptive exploration of a rare genetic disorder seen through the eyes of a mother and son.Pub Date: June 20, 2017
ISBN: 978-1-4767-7404-6
Page Count: 304
Publisher: Simon & Schuster
Review Posted Online: April 16, 2017
Kirkus Reviews Issue: May 1, 2017
The author's youthfulness helps to assure the inevitable comparison with the Anne Frank diary although over and above the...
Elie Wiesel spent his early years in a small Transylvanian town as one of four children.
He was the only one of the family to survive what Francois Maurois, in his introduction, calls the "human holocaust" of the persecution of the Jews, which began with the restrictions, the singularization of the yellow star, the enclosure within the ghetto, and went on to the mass deportations to the ovens of Auschwitz and Buchenwald. There are unforgettable and horrifying scenes here in this spare and sombre memoir of this experience of the hanging of a child, of his first farewell with his father who leaves him an inheritance of a knife and a spoon, and of his last goodbye at Buchenwald his father's corpse is already cold let alone the long months of survival under unconscionable conditions.
Pub Date: Jan. 16, 2006
ISBN: 0374500010
Page Count: 120
Publisher: Hill & Wang
Review Posted Online: Oct. 7, 2011
Kirkus Reviews Issue: Jan. 15, 2006
A wonderful page-turner written with humility, immediacy, and great style. Nothing came cheap and easy to McCandless, nor...
The excruciating story of a young man on a quest for knowledge and experience, a search that eventually cooked his goose, told with the flair of a seasoned investigative reporter by Outside magazine contributing editor Krakauer (Eiger Dreams, 1990).
Chris McCandless loved the road, the unadorned life, the Tolstoyan call to asceticism. After graduating college, he took off on another of his long destinationless journeys, this time cutting all contact with his family and changing his name to Alex Supertramp. He was a gent of strong opinions, and he shared them with those he met: "You must lose your inclination for monotonous security and adopt a helter-skelter style of life''; "be nomadic.'' Ultimately, in 1992, his terms got him into mortal trouble when he ran up against something—the Alaskan wild—that didn't give a hoot about Supertramp's worldview; his decomposed corpse was found 16 weeks after he entered the bush. Many people felt McCandless was just a hubris-laden jerk with a death wish (he had discarded his map before going into the wild and brought no food but a bag of rice). Krakauer thought not. Admitting an interest that bordered on obsession, he dug deep into McCandless's life. He found a willful, reckless, moody boyhood; an ugly little secret that sundered the relationship between father and son; a moral absolutism that agitated the young man's soul and drove him to extremes; but he was no more a nutcase than other pilgrims. Writing in supple, electric prose, Krakauer tries to make sense of McCandless (while scrupulously avoiding off-the-rack psychoanalysis): his risky behavior and the rites associated with it, his asceticism, his love of wide open spaces, the flights of his soul.
Pub Date: Jan. 1, 1996
ISBN: 0-679-42850-X
Page Count: 320
Publisher: Villard
Review Posted Online: May 19, 2010
Kirkus Reviews Issue: Oct. 15, 1995
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